1/31/11

First hold

Dulce was three weeks old and still so fragile,
but by this time I had pretty much given up on
the idea of holding her in my arms ever.
I had to try and come to terms every time the
desire came to me. It felt so unfair.
I would watch as the other mothers got to hold
their babies and I so longed to have contact with
Dulce. The days seemed so long sometimes because
I could not have the embrace I was yearning for.
I kept wondering what she would feel like.
Would I feel her weight or a bunch of blankets
which is what I kept hearing from people.
It seemed like I was so aware all of a sudden of
mothers holding their babies and specially
pregnant women and I must say it was quite
annoying because I just wanted to ignore them,
but it seemed like they would appear out of nowhere.
I swear I could spot a prego a mile away.
I longed for the months I missed and it was also a way of
holding my baby, a way of protecting her, but it was not
ever going to happen.
One day the nurses started to mention doing some
skin to skin. I had heard all about this from day one
in the NICU, but the very words that followed were,
but she is too fragile still. So as I heard this I was
waiting for the but...
Instead they said if she was having a good day with
no events and if she seemed stable I could hold her.
The nurse had told me we could check every morning.
So that's what I did. I would call and see how her night
was and if today was the day.
After a few yes's that quickly turned into no's due to
some event of the day. My day had finally come!
Dulce was having a good day and I tried to prepare the
best I could like taking a shower right before my visit
and putting nice fresh clothes on. I also invited my mom
to come share in this special moment since Greg had to work.
My mom was also going to record our first embrace.
So I got to the hospital and I was so anxious and READY!
I put on a hospital gown and I sat in a rocking chair right
next to Dulce's isolette.
It was quite the ordeal to move Dulce because of all the
cords and off course the ventilator and Iv's.
The nurse finally handed Dulce to me and I just felt
like I was holding blankets because she was so light
and also because she was really bundled.
It was so nice to be so close to her.
The position wasn't quite right and I couldn't
adjust her due to the ventilator so I couldn't
explore her features like I wanted too.
She was face down on my chest.
While I was holding her the nurse was telling
me how some babies relax in their mother's
arms and that could potentially be dangerous.
Well a minute after she had told me this.
Dulce started to desat and she had a serious
apnea and bradycardic spell. The nurse had to try
and resuscitate Dulce right there in my arms
because it would take too long to move her since
they had pinned all tubing on my gown.
I sat there helpless trying not to move so I wouldn't
make things more difficult for the nurses.
So my little girl got on my lap for the very first time
and she relaxed. Too relaxed that it threatened her
life.
Meanwhile my mom was recording this from the
beginning and as things went downhill she didn't
know what to do so she kept recording.
The nurse just kept on working to get Dulce's
levels to come back up. I remember seeing
panic in the nurse's eyes and she kept repeating
"Come on Dulce, come on Dulce".
I knew what she was thinking. She was thinking
"please don't let this little girl die in her mom's arms
right after the first time she ever held her"
It was so clear as if she was saying it out loud.
I was worried, but calm. I had a feeling she was
not going to die so I held on to that and tried to
calm my breathing and heart rate to try and help
her in some way. Because I had heard that they will
try to mimic your breathing. That was the extent of
what I could do.
Finally Dulce stabilized and we were able to move her
to the isolette again. So that was my first time holding
my precious Dulce. Not at all what I expected.
My little girl almost died in my arms and I don't believe
I will ever be able to forget that experience.
No matter how scary that was I also LOVED the short
period I had her so close to me. I knew as well if something
bad had happened during that episode I was glad she was in
my arms where she belonged.
The other times I held Dulce she did just fine.
I tried to watch the video of the first time and
I was able to watch only a minute before I realized
I did not want to remember that in so much detail.
I was never able to watch the whole video.

1/17/11

Breakdown

Everyday I visited Dulce at the NICU
was difficult. She had so many complications
from the very first day until the end.
I got call from the hospital on a daily basis.
You would think that would be a good
thing, but they only called when there was
something bad happening. It was always
something like she needs another blood
transfusion or we tried to take her off the
breathing machines and she did horrible
so we had to put her back on.
Every time I was with Dulce it was like
most of the weight of my shoulders were
being lifted and I felt happy, truly happy
to be with her. It seemed like her spirit
would just wrap around me like a warm
blanket. Even going to the parents lounge
or the bathroom was hard because I wanted
to stay glued by her.
I made sure to never be upset when I was
at her bedside to make sure she didn't feel
my sadness. If I needed to cry I would go to
the parent's lounge. I had to hold in a lot of
feelings I had as the Doctors would tell me
something new was wrong with her.
So the breakdowns started from day one
pretty much. This is how it went I would
feel fine while I was with Dulce, but the
second I left the NICU this overpowering
sadness went over me and I would start
to realize that I would not see her for a
few hours and that killed me.
The drive home was the worst because
I would just breakdown and cry all
the way home. Most of the time I would
have to pull over because I couldn't see
the road anymore. It felt like I could not
be whole without being with Dulcinha.
When I was home I just felt like a portion
of myself was dead and I was not myself.
It changed me and the change was permanent.
Like sometimes I thought that kind of pain
could kill someone and nope I was still alive
and well. There were times I thought
"How can this much agony not kill me?"
I had to try to be happy for my family and
friends, but I never really shared my
true sadness and despair of what I was
going through. The couple of times I
tried it ended up making the person
start crying and honestly I could barely
comfort myself let alone comfort others.
So that didn't help me much and it just
aggravated me.
I also had to not share too much with my
hubbie too because he was going through
a lot we were handling it so differently.
So I kept most things to myself and always
tried to put a smile on my face even when I
felt like crying and being alone.
I knew only Dulcinha could make me feel
better so I decided after a little while
and because time would permit that I
stay with Dulce for 12 hours a day.
She was my comforter and I felt like
it was all I could do for her was to be
there.

1/13/11

NICU days....

As I entered the NICU for the very first
time I noticed it was so different from any
place I had ever been. I entered directly
into a room for us to scrub in. The staff
was very specific about how to wash our
hands and clean under our nails and not
to pick up our purses or coats after we
washed up.
I found it strange and did not
understand why we had to do all that...
now that makes me laugh because of how
picky I've become with hand washing and
keeping things clean for Dulce. I know it
has a lot to do with everything we learned there.
As I entered the main part of the NICU it
was full of isolettes with nurses and mothers
at the bedside. All isolettes had beautiful blankets
on top. The silence and peaceful setting they
were trying to achieve was very clear.
Dulce's isolette was located at very end of the room
the furthest from the door. Later I found out
that the closer you were to the door meant the
closest you were to leaving the NICU. So Dulce
was one of the most critical patients there at
the time.
When I saw Dulce I did not recognize her
she looked so different from our short
introduction we had the previous day.
She looked swollen from all the fluids
they were pumping into her.
I kept looking at Dulce thinking how I felt
no connection to her. She didn't feel
like she was mine. I thought there
would be an instant connection when
I saw her again, but It felt like I was
visiting a complete stranger.
I could not get passed the feeling that
she was ripped from me and there was
no bonding time when she was delivered.
There was no holding, kissing, and nursing.
The things I thought I would do when I had
my baby.
I struggled to connect with Dulce.
I wanted so badly to just hold her and kiss
her and find a way to bond, but as I sat next
to her all I could really do was to look at her.
The nurse had told me that we could not touch
her very much or talk to her because too much
stimulation would change the results of the
blood tests they did every couple of hours.
It was horrible to hear that I could not touch
my own little baby... It was hard to swallow
all they asked of me, but I understood and
did what they asked.
One very important thing I noticed was
how I could feel Dulce's spirit. It was so
strong and there was no mistake that
inside that little body was a fighter.
I had no idea how much of a fighter
she would be... how she would fight
for each breath, each day, each minute
of her NICU days. She taught me what
it is like to fight for your own life and
how precious life is.
To be continued......